ARIA’s Patient Community Collaborators program aims to establish strategic partnerships that support ARIA by providing patient-centric input across our work. Collaborators receive awards designed to foster synergy, avoid redundancy, and accelerate progress toward shared goals within the autism and neurodevelopmental space.
This project supports the expansion of the Next Gen Sibs Program to include more sites and second-degree relative relations. It seeks to improve early detection by determining the clinical features associated with autism in infants with a family history of autism, and measure the trajectory of features and outcomes across development to provide support and intervention.
The N=1 Collaborative is working to standardize the sharing of clinical data for rare genetic, neurodevelopmental diseases with the goal of advancing individualized precision drug development. This award will support the development of a regulatory compliant platform—the Individualized Medicine Knowledge Base—that will integrate a gene registry with preclinical and clinical databases.