Collaboration and capacity building are central to our multisector approach to developing and shaping large-scale scientific initiatives. Our Community Collaborators represent organizations, patient‑centered groups, and networks with whom we will establish and sustain partnerships to ensure that the voices and lived experiences of individuals and families meaningfully inform ARIA’s research and clinical efforts. Collaborators receive target awards designed to foster synergy, build infrastructure, avoid redundancy, and accelerate progress toward shared goals in autism and related neurodevelopmental conditions research.
This project supports the expansion of the Next Gen Sibs Program to include more sites and second-degree relative relations. It seeks to improve early detection by determining the clinical features associated with autism in infants with a family history of autism, and measure the trajectory of features and outcomes across development to provide support and intervention.
The N=1 Collaborative is working to standardize the sharing of clinical data for rare genetic, neurodevelopmental diseases with the goal of advancing individualized precision drug development. This award will support the development of a regulatory compliant platform—the Individualized Medicine Knowledge Base—that will integrate a gene registry with preclinical and clinical databases.